Huntington’s disease – Food management strategies

Huntington’s disease (HD) is a rare, inherited neurodegenerative disease. This brain disorder is a result of an inherited mutation in a gene for the protein called huntingtin. It is known to significantly impact one’s functional abilities, leading to the development of movement, cognitive, and psychiatric disorders. Those with Huntington’s have a higher risk of choking and developing eating and swallowing troubles. To ease this, the following tips may be helpful:
Food management strategies for Huntington’s disease
- Rest one to two hours before mealtime.
- Create a calm and relaxed eating environment.
- Sit in an accessible spot on the table, just in case choking occurs and a carer needs to be involved.
- Sit in an upright position while eating. Avoid lying down.
- Instead of eating three spaced apart meals, eat smaller, more frequent meals.
- Choose foods that are easier to chew and swallow.
- Keep eating aids within reach.
- Use non-slip table mats and light utensils such as plastic knives and forks.
- Incorporate sauces and gravies to make foods easier to swallow.
- Avoid hard foods such as nuts and lollipops.
- Avoid food that separates into strings or sections during chewing, such as tomatoes and bacon.
- Opt for foods that have a higher nutritional value. For instance, opt for a protein smoothie instead of a cup of black tea.
- Avoid non-fat and low-fat products.
- Drink fortified beverages such as juices, protein shakes, and nutritional supplement drinks.
- Remain sitting upright for up to half an hour after a meal. Lying down too soon could increase the risk of reflux and choking.
  Symptoms of Huntington’s Disease 
   Symptoms of this condition can be classified into three major categories:  
  Movement-based symptoms, such as: 
   Involuntary movements or writhing, known as chorea 
  Muscle problems such as rigidity or muscle contracture 
  Slow or unusual eye movements 
  Impaired posture and balance 
  Difficulty with speech and swallowing  
  Cognitive impairments, such as: 
   Difficulty organizing, prioritizing, and focusing on tasks 
  Lack of flexibility and tendency to get stuck on a task 
  Lack of impulse control leading to outbursts 
  Lack of awareness of one’s behavior and abilities 
  Slowed down thought processing 
  Memory loss 
  Hallucinations 
  Difficulty in learning new information  
  Psychiatric and behavioral symptoms, such as: 
   Depression 
  Irritability 
  Social withdrawal 
  Insomnia 
  Fatigue or loss of energy 
  Mania 
  Obsessive-compulsive disorder 
  Polyphagia 
  Hypersomnolence 
  Stubbornness